Dr Paul Chrisp, Director of the Centre for Guidelines, National Institute for Health & Care Excellence (NICE) is one of our keynote speakers at our upcoming event: UK Medicinal Cannabis Summit
His lecture is entitled: CBMP’s | What does NICE say & why?
If you had the opportunity to ask Dr Chrisp one question around cannabinoid medicine - what would it be?
Why does NICE refuse to acknowledge the 1000s of studies performed by highly reputable academic and medical institutions that are performed outside the UK. Do they really believe that the Uk is the only place to acquire real information or is it because of the political connections of GW Pharma?
What does NICE have against quality of life for chronic pain patients? The NHS does not have the resources for physio with chronic long term conditions with no cure, and the diagnostic journey for painful rare diseases is lengthy because many do not have straightforward biomarkers. Their new guidance for the poorly defined "primary pain" means most will now never get a diagnosis, and will receive no treatment because doctors can't see pain.
Why are the planned studies only looking at CBD for chronic pain? Project Twenty21 and moderate/high THC cannabis is the only thing helping me manage pain after failing nearly every medication and not being a candidate for interventional pain management. I started with CBD, but it wasn't effective even at high doses until I added THC. Vaporised cannabis flower and sublingual oils are more effective and have less side effects than the medication I'd been taking on the NHS, while actually improving other systemic conditions that come with my rare disease. There is so much evidence that THC is needed, so why is that being ignored in your study design?
Why are you ignoring all the scientific evidence proving that THC is effective at treating several illness including chronic pain and several mental health problems? If you "can't find it" I'm happy to send it to you in a neat little package
with all due respect you're still not listening to us the patients when we say CBD/THC helps with pain! Many like myself cannot tolerate exercise to a point of much benefit. What patients were consulted before you came to all these recommendations?
Do the changes to the management of chronic pain announced by NICE today, and the recommendation to NOT prescribe opiods and paracetamol, provide an opening for an increased dialogue around the prescribing of medicinal cannabis? One of the reasons given previously for not recommending medicinal cannabis is that the cost of opiods is already high. If they are going away then does that, in your eyes, make the case stronger for medicinal cannabis?
Cannabis will never fit the current model of research used by NICE, and so it must be adapted.
With hundreds of phytocannabinoids, terpenes and flavanoids, each with (potentially) medical applications that work with our ECS, it would take decades to isolate each compound and thoroughly test them sufficiently through RCT's before they could be used in the current NICE model.
With many thousands of people already willing to share their subjective, real-world data/evidence, shouldn't the NHS be asking for patients, whether Private, NHS (or those medicating illegally) to provide them with data they need so we can progress the research more quickly?
Failing that, use the 20,000+ studies already available globally on medical cannabis.
I have two questions... What does NICE have against quality of life for chronic pain patients? The NHS does not have the resources for physio with chronic long term conditions with no cure, and the diagnostic journey for painful rare diseases is lengthy because many do not have straightforward biomarkers. Their new guidance for the poorly defined "primary pain" means most will now never get a diagnosis, and will receive no treatment because doctors can't see pain.
Why are the planned studies only looking at CBD for chronic pain? I was cannabis naive when starting Project Twenty21 and moderate/high THC cannabis is the only thing helping me manage pain after failing nearly every medication and not being a candidate for interventional pain management. I started with CBD out of fear, but it wasn't effective even at high doses until I added THC. Vaporised cannabis flower and sublingual oils are more effective and have less side effects than the medication I'd been taking on the NHS, while actually improving other systemic conditions that come with my rare disease. There is so much evidence that THC is needed, so why is that being ignored in your study design?
Why do NICE not allow cannabis on the NHS for pain even now that you are withholding all painkillers from chronic pain patients? What about those of us with severe pain that need a painkiller?
As someone who has 10/10 pain and is bedbound, screaming and crying 24/7 unable to move or do anything and wanting to die from the pain without STRONG painkillers (such as fentanyl), I NEED a painkiller to live. I have tried everything and as I have had the pain decades now, where I went without painkillers for years until I couldn't anymore. I need painkillers to help the pain as without the pain is so bad I would rather be dead. screaming 24/7 from unbearable pain where nothing else helps means I need a painkiller.
Why should I not be able to get cannabis when you can if you have money from a private doctor? How is that fair?
Why does NICE not acknowledge the masses about of existing evidence that cannabis works for pain and all the millions in the UK let alone all over the world that use cannabis for pain whether it be legally or illegally if they can't access it on prescription?
Cannabis works for pain, hence all the people paying for it from private doctors yet you are withholding this from patients who don't have hundreds of pounds a month.
will NICE help me control my CINV when all my life savings are gone, this keeps me awake at night and the thoughts of my CANCER come-back. Thanks . Kind Regards Dr Paul Chrisp.
Why does NICE refuse to acknowledge the 1000s of studies performed by highly reputable academic and medical institutions that are performed outside the UK. Do they really believe that the Uk is the only place to acquire real information or is it because of the political connections of GW Pharma?
Got 3 questions...
What does NICE have against quality of life for chronic pain patients? The NHS does not have the resources for physio with chronic long term conditions with no cure, and the diagnostic journey for painful rare diseases is lengthy because many do not have straightforward biomarkers. Their new guidance for the poorly defined "primary pain" means most will now never get a diagnosis, and will receive no treatment because doctors can't see pain.
Why are the planned studies only looking at CBD for chronic pain? Project Twenty21 and moderate/high THC cannabis is the only thing helping me manage pain after failing nearly every medication and not being a candidate for interventional pain management. I started with CBD, but it wasn't effective even at high doses until I added THC. Vaporised cannabis flower and sublingual oils are more effective and have less side effects than the medication I'd been taking on the NHS, while actually improving other systemic conditions that come with my rare disease. There is so much evidence that THC is needed, so why is that being ignored in your study design?
Why are you ignoring all the scientific evidence proving that THC is effective at treating several illness including chronic pain and several mental health problems? If you "can't find it" I'm happy to send it to you in a neat little package
with all due respect you're still not listening to us the patients when we say CBD/THC helps with pain! Many like myself cannot tolerate exercise to a point of much benefit. What patients were consulted before you came to all these recommendations?
Do the changes to the management of chronic pain announced by NICE today, and the recommendation to NOT prescribe opiods and paracetamol, provide an opening for an increased dialogue around the prescribing of medicinal cannabis? One of the reasons given previously for not recommending medicinal cannabis is that the cost of opiods is already high. If they are going away then does that, in your eyes, make the case stronger for medicinal cannabis?
Cannabis will never fit the current model of research used by NICE, and so it must be adapted.
With hundreds of phytocannabinoids, terpenes and flavanoids, each with (potentially) medical applications that work with our ECS, it would take decades to isolate each compound and thoroughly test them sufficiently through RCT's before they could be used in the current NICE model.
With many thousands of people already willing to share their subjective, real-world data/evidence, shouldn't the NHS be asking for patients, whether Private, NHS (or those medicating illegally) to provide them with data they need so we can progress the research more quickly?
Failing that, use the 20,000+ studies already available globally on medical cannabis.
Why will they not accept data and evidence from other countries like Israel?
I have two questions... What does NICE have against quality of life for chronic pain patients? The NHS does not have the resources for physio with chronic long term conditions with no cure, and the diagnostic journey for painful rare diseases is lengthy because many do not have straightforward biomarkers. Their new guidance for the poorly defined "primary pain" means most will now never get a diagnosis, and will receive no treatment because doctors can't see pain.
Why are the planned studies only looking at CBD for chronic pain? I was cannabis naive when starting Project Twenty21 and moderate/high THC cannabis is the only thing helping me manage pain after failing nearly every medication and not being a candidate for interventional pain management. I started with CBD out of fear, but it wasn't effective even at high doses until I added THC. Vaporised cannabis flower and sublingual oils are more effective and have less side effects than the medication I'd been taking on the NHS, while actually improving other systemic conditions that come with my rare disease. There is so much evidence that THC is needed, so why is that being ignored in your study design?
I have lots tbh, so one second question would be:
Why do NICE not allow cannabis on the NHS for pain even now that you are withholding all painkillers from chronic pain patients? What about those of us with severe pain that need a painkiller?
As someone who has 10/10 pain and is bedbound, screaming and crying 24/7 unable to move or do anything and wanting to die from the pain without STRONG painkillers (such as fentanyl), I NEED a painkiller to live. I have tried everything and as I have had the pain decades now, where I went without painkillers for years until I couldn't anymore. I need painkillers to help the pain as without the pain is so bad I would rather be dead. screaming 24/7 from unbearable pain where nothing else helps means I need a painkiller.
Why should I not be able to get cannabis when you can if you have money from a private doctor? How is that fair?
Why does NICE not acknowledge the masses about of existing evidence that cannabis works for pain and all the millions in the UK let alone all over the world that use cannabis for pain whether it be legally or illegally if they can't access it on prescription?
Cannabis works for pain, hence all the people paying for it from private doctors yet you are withholding this from patients who don't have hundreds of pounds a month.
will NICE help me control my CINV when all my life savings are gone, this keeps me awake at night and the thoughts of my CANCER come-back. Thanks . Kind Regards Dr Paul Chrisp.